There are a few charities who have touched my heart throughout this painful journey. When you're faced with such awfully deep sadness as we have been through, you find all these wonderful people who've not only been there before but are using their own grief to try to make things that little bit better for us all. Many heartfelt thanks to them all.
Snowdrop Appeal - Raised money for the cold cot Isla lay upon in hospital, that allowed us such precious time with our beautiful daughter. Now raising money for a separate room at Derriford for bereaved parents, which we are hoping to raise a lot of money for! http://snowdropappeal.webplus.net/
Saying Goodbye - the Exeter cathedral service which was just so very beautiful http://www.sayinggoodbye.org/
Aching Arms - What a beautiful sentiment, to receive a bear from another grieving mother to let you know you're not alone at such a sad time http://www.achingarms.co.uk/
Upon Butterfly Wings - Lovely gifts for bereaved parents from Bobby's Beanies http://www.uponbutterflywings.org/p/bobbys-beanies.html
Fifth Disease - An Irish charity dedicated to raising awareness of Slapped Cheek / Parvovirus B19 / Fifth Disease. They sent me a load of fliers which I have given to the head of midwifery at Derriford hospital and will be sending to all child centres, GP offices and play groups in the city hopefully. Awareness will hopefully mean no other babies need die from this little-known but deadly virus. http://www.fifthdisease.org/
Well this is quite exciting. I wouldn't have had anything to put today really, although I have found the SANDs forums and Babycentre Pregnancy and Infant Loss forums very useful, as well as all the many baby loss blogs I have read and related to.
Until you're IN this community of people who have lost their children, you don't really realise it's there and it's huge. People now tell you about their own losses, recent or from years ago. But still there's a veil of secrecy around it, which is why this project is so good. It's okay to talk about these things, even though talking about a baby dying is one of the most painful things.
I've recently found out that a number of people have 'unfriended' me or blocked my posts since I lost Isla. Not just since I started this project and posting every day, but since she died 3 months ago. Maybe they find my grief too much to confront. That's fine but I hope those that do read and respond in some way are finding it useful / interesting / fascinating / sad / helpful / inspiring / memorable (delete as appropriate).
Anyway, aside from the huge community of bloggers and forum users, I am organising a community event alongside a friend of mine. We haven't any photos yet but as of yesterday we have a website, sponsorship forms, info pages and safety disclaimers! We are organising a commando-style assault course at Okehampton Camp in Devon in aid of Snowdrop Appeal in memory of Isla and Cure Rett, in celebration of 4 year old Holly who is battling Rett Syndrome. It's going to be such a great day out!
SAVE THE DATE - SUNDAY 9TH DECEMBER 2012
See our fabulous new website for more details and downloads! http://isla-and-holly.weebly.com. My photo for today is our event poster:
Hopefully the first of many fundraising events!
